Jonny Kennedy was an extraordinary man with a terrible condition – Dystrophic Epidermolysis Bullosa (EB) – which means his skin literally fell off at the slightest touch. This is the story of his extraordinary life. In this absolute documentary, Jonny shares the last 4 months of his life which involves learning how to fly, visiting 10 downing street, and arranging his own funeral.

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From: The Boy Whose Skin Fell Off

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